Every donation, no matter how small, helps us come closer to our target. We are happy that you trust in us and support us with a donation.

An Orphan Drug for Elodie's future 

Elodie is a 10-year-old girl with a severe and degenerative «rare disease». The so called «Salla disease» belongs to the group of metabolic diseases and these affect, with serious and severe complications, mostly children. Degenerative means for Elodie that everything she has learned so far, she already lost again. In addition to forgetting words, coordination and balance, these include the loss of vital functions such as swallowing and breathing.

Since there is no orphan drug for this disease, her parents met first online and in September 2018 with other affected families and doctors 2018 in New York. The goal of this meeting was to launch a innovativ drug trial on «Salla Disease» with an existing drug to help Elodie and many other children with that disease.

This study is very important for the family and costs about 300.000 USD. That's why we help Elodie and her parents so they can join soon. The money must be collected through fundraising because no pharmaceutical company has been interested in co-financing the study or testing the substance for the possible drug application.

Important to know: Any "clinical study" for a new drug also allows the use of knowledge for other «rare diseases» (translational medicine) and thus sprouts courage and hope in many other affected families. Her parents want to take this unique opportunity to give Elodie a better quality of life and a lifetime.

You donation is very much appreciated! Please send it with the remark «Elodie» by bank transfer, Paypal or credit card. It will support all Elodie’s in the world and children and families affected by other rare diseases.

Zurcher Kantonalbank, Bahnhofstrasse 10, 8010 Zurich

Account of the Orphanhealthcare Foundation: remark «Elodie»

OHC, Albisriederstrasse 243a, 8047 Zurich, Switzerland

IBAN CH74 0070 0110 0056 2760 7

clearing: 700, SWIFT (BIC): ZKBKCHZZ80A

Thank you – also in the name of affected families – for your contribution!

We are tax-exempt and a recognized charity. Your donations to us can be deducted from your taxes. We will gladly provide you with a donation confirmation.




 

Your contribution to foster our Health Care Program 

Do you want to support the first and holistic healthcare program «ELFEN HELFEN»?  We support families at the first alternative Swiss center for rare diseases in Zurich through counseling- accompanying - enabling.

Our legendary comic book «So wie Du und Ich», the handmade finger puppets for therapy and gaming, our popular «Elfen-Camps» and our «Black Nose» campaign are the cornerstones of our sustainable development program. Together, we provide knowledge hope and enable the quality of life of the whole family and increase resilience.

Donate any amount to our donation account with Zurcher Kantonalbank, by credit card or PayPal, with the note «ELFEN HELFEN».

Zürcher Kantonalbank, Bahnhofstrasse 10, 8010 Zurich,

IBAN: CH65 0070 0110 0025 9021 4

Clearing: 700,  SWIFT(BIC): ZKBKCHZZ80A

Thank you – also in the name of all affected families – for your contribution!

We are tax-exempt and a recognized charity. Up to 20% of your donations to us can be deducted from your taxes. We will gladly provide you with a donation confirmation at the end of the year.





 


 

 

ELFEN Camp

 

Friends of Foundation

Become a pioneer for rare diseases and join the promotional association. Support us proactively with your membership in «Friends of Foundation» and be invited to special events. More information is available here. You can sign up below.

Founding a legacy

Do you want to support us with a legacy? Please contact us. We will gladly take the time to talk to you and discuss your ideas and options or send you detailed information by mail. Please contact us on: frank.g@orphanhealthcare.com or by phone: 
+41 79 246 50 69.

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Please contact us on +41 79 246 50 69 or frank.g@orphanhealtcare.com. 

 

We are tax-exempt and a recognized charity. Up to 20% of your donations to us can be deducted from your taxes. We will gladly provide you with a donation confirmation at the end of the year.