Let us give people with «rare diseases» a voice and a face together!

Background: the international Rare Disease Day is an annual event. Affected persons, family members, charity organizations, foundations and umbrella associations around the world host campaigns on the subject of «rare diseases» that day. Black Nose, the foundation's registered trademark, is our campaign and is to motivate people to join in and show those affected that «I work for you.» Our black nose lives on and is currently motivating thousands of people who work for children with rare diseases and donate to our work. 

Become part of the campaign and show your solidarity with these affected children and families. All of Canton Wallis is already showing its great heart and great commitment to Elias, putting on a black nose and donating for surgery in the USA. 

Join in and support our great campaign with your nose photograph and a little donation. 

Our partners Barry Family & Friends, Natacha, Günther Novak and may other commitment artists have joined in, too! 

Download sheet to cut out black noses

Send us your best picture and win one of the great prices. Scroll down to get to our competition.

Black Nose Day on the Bürkliplatz in Zürich on Sunday, 26 February 2017, as a symbol of solidarity and inclusion. Founder Frank Grossmann celebrates with Elias, the Swiss singer Natacha, presentress Karin Lanz and hundreds of participants the Black Nose Day. Photo: Siggi Bucher

 

 

Founder Frank and Swiss German singer Natacha
on Radio Zürisee. 

Frank and Swiss German singer Natacha
on Radio Energy Zurich. 

Black Nose Campaign goes on

The black nose continues to live long after the Black Nose Day because affected children and families still need our help and super. Swiss German singer Natascha gives affected people a voice and motivates more and more people to commit theirselves to children with a rare disease and to donate for them. The songwriter Günther Novak from Austria and the Band Gotthard are as well involved. 

Become part of the campaign and show your solidarity with these affected children and families and donate for Elias' surgery in the USA. 

Join in and support our great campaign with your nose photograph. We thank you in the name of all affected people. 

Band Gotthard
Songwriter Günther Novak

Your support for children like Elias

Children like Elias urgently need our help. If they suffer from a rare disease, their life is twice as much as hard than other children. They are forced to undergo innumerable therapies and their greatest wish is to play with friends and have a normal everyday life.  

There are too few medicines for rare diseases (Orphan Drugs, Orphan Diseases, Rare Diseases). Most of them are so expensive that many health and other insurances refuse to pay for them. Many times children have to travel abroad to a specialised hospital. 

Therefore we urgently need donators and sponsors in order to enable such surgeries. In the case of Elias, a complexe lung surgery is needed to improve his quality of life. Elias will be able to breathe easily after this surgery. His coughing attacks and lung spasms will decrease noticeable. This surgery is necessary to increase the oxygen and relieve his small, only half- hart. With this surgery his survival chances will raise significantly. We owe our help and support to all children suffering from a rare disease. Therefore we need your help!

15 CHF 25 CHF 50 CHF









We thank you very much for your important support.  
Foundation Orphanhealthcare

Our fundraising target: CHF 100.000 
 
Further commitment 

Do you want to support Elias and his surgery? Donate any amount to our special donations account "action Elias". Donations are possible via credit card and  Paypal with comment:   „Action Elias“. Thanks a lot! If you donate CHF 100.- and more, you will get a donations receipt by the end of the year. 

Zürcher Kantonalbank, Bahnhofstrasse 9, 8010 Zürich

IBAN: CH74 0070 0110 0056 2760 7                                                     Clearing: 700 / SWIFT (BIC) ZKBKCHZZ80A

Friends of Foundation is the foundation's promotional club. Do you want to join in and have a long-term impact? Promotional club Friends of Foundation? Learn more here.





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10 super tolle Preise warten auf die eindrücklichsten, lustigsten Nasenfotos, die Ihr uns hier schickt. Wir verlosen Preise im Gesamtwert von über 3000 .- Franken.

1. Preis ist ein Gutschein über 1000.- Franken für Schmuck von Vainard aus Zürich
2. Preis sind 2 Tickets für ein Konzert von Natacha und einem privaten Foto mit der Künstlerin
3. Preis ist ein Gutschein über 800.- Franken für Schmuck von Vainard
4. Preis: Gutschein über 500.- Franken von Vainard
5. Preis: brandneue handsignierte CD von Natacha
6.-7. Preis: 2x PAUL MITCHELL Pflegeset, MarulaOil Classic Care Gift (Wert:je 170.-)
8.-9. Preis: 1 Comicbuch mit je 12 Miniaturtieren (Wert 130.-)
10. Preis: Stofftier Cuba gross (Wert: 25.-)